DIPG/DIPT Discussion

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Just One More Day for Love, Hope & a Cure

A searchable blog on DIPG research, DIPG news, recent publications, DIPG Foundations, DIPG researchers, clinical trials as well as other issues relating to Diffuse Intrinsic Pontine Tumors- both Diffuse Intrinsic Pontine Gliomas (DIPGs) and Atypical Pontine Lesions (APLs).

For parents, family and friends of children with DIPG looking for information and connection to others dealing with DIPG please check the buttons on the right hand side for resources.

Saturday, March 14, 2009

DIPG Digest

DIPG News brought to you by:
Just One More Day for Love, Hope & a Cure

Medical News
p16 promoter methylation in the serum as a basis for the molecular diagnosis of gliomas.: http://www.ncbi.nlm.nih.gov/pubmed/19240607?ordinalpos=5&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

Interferon-beta, MCNU, and conventional radiotherapy for pediatric patients with brainstem glioma.: http://www.ncbi.nlm.nih.gov/pubmed/19260101?ordinalpos=3&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

Targeting multiple kinases in glioblastoma multiforme.: http://www.ncbi.nlm.nih.gov/pubmed/19243279?ordinalpos=29&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

National Childhood Brain Tumor Prevention Network Act of 2009

Advocacy Resource Center-

Yahoo Group-
CBTPN · Childhood Brain Tumor Prevention Network: http://groups.yahoo.com/group/CBTPN/

State Resolutions to Support S. 305 and H.R. 653: http://www.justonemoreday.org/Advocacy/StateResolutions.html

FDA Open Public Hearing on Avastin

March 31, 2009
from 8:30 a.m. to 4:30 p.m. Hilton Washington DC/Silver SpringThe Ballrooms8727 Colesville Rd., Silver Spring, MD301-589-5200.

Information from the FDA: http://www.fda.gov/OHRMS/DOCKETS/98fr/oc20098-nm.pdf
Background information available March 29, 2009: http://www.fda.gov/ohrms/dockets/ac/09acdocs.html

Foundations News

Moss Report Newsletter provided by MJ's Children's Glioma Cancer Foundation: http://www.marcjr.org/FoundationMembers/MossReport/tabid/461/Default.aspx

The Cure Starts Now http://www.thecurestartsnow.org/

The Cure Starts Now is happy to welcome Jon and Anne Cinnelli and Marc and Emily Quayle to our strategic council. Both families know all to well the struggles we face in the fight against brain cancer and have made a major financial contribution to The Cure Starts Now and we look forward to their leadership contributions now. Their place on the strategic council will help guide us to the first 10-13 branches of CSN opening by years end. They will also help the existing strategic council decide on funding more research grants (our second funding cycle in 6 months). We are excited about the new partnerships and being able to broaden our operations. If you would like more information in joining these families in their combine fight against brain cancer, please contact me at brooke@thecurestartsnow.org.
Please join us on April 4th in Macon Georgia for the Imagine a Cure Music and Food Festival benefitting The Cure Starts Now. Organized by Patsy Mercer whose relative, Brayden Harrell, lost his battle with brain cancer. The event will be a wonderful tribute to him and other children who have and will battle brain cancer. Visit http://2009imagineacure.com/ for more details and we hope to see you there.

For past issues of DIPG Digest please visit http://www.justonemoreday.org/ParentPointers/DIPGDigest.html

Please submit information you feel will be helpful to DIPG families to JustOneMoreDay@cfl.rr.com subject: DIPG Digest

Copyright 2008 - 2009 Just One More Day for Love, Hope & a Cure, Inc. All rights reserved. The materials and links provided on this site have been prepared for information purposes only and should not be construed as advice or opinions on any specific facts or circumstances. Medical research concerning disease and treatments is an ongoing process. Readers should not act upon this information, but should obtain advice from physicians, medical institutions or other professionals, as appropriate.