Please join us on September 17, 2011 as we celebrate Childhood Cancer Awareness Month along with the life of Alicia Marie Martin

Bowl for the Gold ~ Strike Back Against Childhood Cancer

Scrapbook and fight DIPG!

In Memory of Mara Adams

• During the month of October, Lisa Yunt will donate 20% of all Creative Memories Sales to “Just One More Day” in memory of Mara Adams.
  

• “Just One More Day” is a charity that focuses on finding a cure for DIPG http://www.justonemoreday.org/.
  

To see the Creative Memories products available, visit http://creativememories.com/MainMenu/Our-products-and-services

Cash, check and pay-pal accepted. Gift certificates available.

For more information, contact:
Lisa Yunt at 253-333-9868 or email: Lisayuntcrops@gmail.com.

DIPG Digest

*****Medical News*****

Tubulin targets in the pathobiology and therapy of glioblastoma multiforme. I. class III beta-tubulin.
J Cell Physiol. 2009 Jul 31
“This minireview focuses on microtubules and tubulin as emerging targets in potential therapy of GBM using a new class of betaIII-tubulin-targeted drugs…”

Targeting rat brainstem glioma using human neural stem cells and human mesenchymal stem cells.
Clin Cancer Res. 2009 Aug 1;15(15):4925-34. Epub 2009 Jul 28
“Genetically engineered NSCs show therapeutic efficacy against brainstem gliomas.”

Virotherapy against malignant glioma stem cells.
Cancer Lett. 2009 Jul 28
“In this review, we highlight the literature regarding the existence of glioma stem cells and their characteristics. We also discuss the potential for virotherapy, a novel therapeutic approach utilizing conditionally replicative viruses, to directly target this population of self-renewing cancer stem cells.”

Dendritic cell vaccines for cancer stem cells.
Methods Mol Biol. 2009;568:233-47
“Our results suggest that only DC vaccination against neurospheres can restrain the growth of a highly infiltrating and aggressive model of glioma and may have implications for the design of novel, more effective immunotherapy trials for malignant glioma and possibly other malignancies.”

Paediatric high and low grade glioma: the impact of tumour biology on current and future therapy.
Br J Neurosurg. 2009 Aug;23(4):351-63
“Brainstem glioma remains a tumour with a dismal prognosis but relatively little is known about the underlying biology and progress will require a concerted effort to collect tissue by biopsy and autopsy to allow appropriate analysis to identify and validate targets. A new era of molecular based therapies offers the promise of major benefits in the management of paediatric glioma but translating this promise into reality will require further understanding of the biology driving these tumours.”

Cediranib: profile of a novel anti-angiogenic agent in patients with glioblastoma.
Expert Opin Investig Drugs. 2009 Aug 12
“Cediranib is an effective drug in patients with glioblastoma, acting through inhibition of angiogenesis and normalization of tumor vasculature. Reduction of vasogenic brain edema is a key component of its treatment effect in this patient population. The primary side effects of cediranib include fatigue, diarrhea and hypertension.”

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September is Childhood Cancer Awareness Month

Team Unite Awareness Flyer http://teamunite.net/pdf/TeamUnite_SEPTEMBER.pdf
Team Unite Awareness Gear http://www.cafepress.com/teamunite/6830914


September 12, 2009

Tyler's Treehouse 5K & 1-Mile Fun Run/Walk
http://www.sportoften.com/events/eventDetails.cfm?pEventId=3992
"Spirit Runners" are always appreciated!
Olde Georgetowne Swim Club, Charlotte, NC

Just One More Day
http://www.justonemoreday.org/help/NewsEvents/Sept.flyer.pdf
Celebrating Childhood Cancer Awareness Day along with the life of Alicia Martin
Sonoma Park
2922 Sonoma Way, Viera, Florida

Love, Chloe Foundation
http://www.lovechloefoundation.org/sept09.html
The foundation will be at Rolling Hills Zoo all day long to sell monkeysWe have the cutest monkeys that we are selling at the zoo. We will also have shirts, hats and bracelets


September 13, 2009

Aimee’s Army
http://www.aimeesarmy.com/howtohelp.htm
The annual Aimee Dickey walk for childhood cancer/DIPG (brain tumors)
Nay Aug Park, Scranton, PA

Just One More Day
http://www.justonemoreday.org/help/NewsEvents/Brianna%20golf%20flyer.pdf
The Brianna Sharp Golf Outing
Country Lake Golf Course
Naperville, Illinois


September 19, 2009

Love, Chloe Foundation
http://www.lovechloefoundation.org/sept09.html
2nd Annual Kickball Jam. Games start at 9am. Teams must be registeredby Tuesday, September 1.

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For past issues of DIPG Digest please visit
http://www.justonemoreday.org/DIPGDigest/DIPGDigest.html

Please submit information you feel will be helpful to DIPG families to
http://health.groups.yahoo.com/group/DIPGFoundationsAlliance/post?postID=zoOUdF5j-M1_moxVNW60JogjJSyo9OuzV7qSCLwN1-mg3AbdOkstpxxZn5yIcvm_pI5NEgqKTIe3JcEOf2aq2VpOIQ subject: DIPG Digest


Copyright 2008 - 2009 Just One More Day for Love, Hope & a Cure, Inc. Allrights reserved. The materials and links provided on this site have beenprepared for information purposes only and should not be construed as advice oropinions on any specific facts or circumstances. Medical research concerningdisease and treatments is an ongoing process. Readers should not act upon thisinformation, but should obtain advice from physicians, medical institutions orother professionals, as appropriate.

Gold Ribbon for Childhood Cancer

Just One More Day has teamed up with Kids V Cancer and Candlelighters Childhood Cancer Foundation in launching a petition for Gold Ribbon Awareness with a goal of a million signatures!

Earlier this year, Candlelighters Childhood Cancer Foundation unveiled the first product to have the gold ribbon for childhood cancer awareness- Jel Sert's Fla-Vor-Ice

In addition to Candlelighters, Jel Sert, also helps brain tumor researcher at Children's Memorial Hospital in Chicago through Reid's Lemon Aid.

This petition is not only to gain awareness but also to thank/recognize the first gold ribbon product. The hope is that overwhelming support of this can be used to convince other companies to consider a gold ribbon on their products.

In addition to signing the petition, one can write or call JelSert for their support of our kids-http://www.jelsert.com/Contact-Us/
1-800-323-2592
Please feel free to pass this one to your friends.

Wall of Courage

~A message from Heide Randall

May is Brain Tumor Awareness Month

As you all know, May is Brain Tumor Awareness Month, and I wanted to make some gear to mark it as such. So, I've created designs for shirts, buttons, magnets, caps, mugs, mousepads, etc. etc. etc.

It was originally only intended for our youngest BT warriors and angels, but due to popular demand I've added designs for adult BT warriors and angels, as well.

The products are available here: http://cafepress.com/btwallofcourage ...

There is a special section featuring products with pictures of over 120 of our youngest BT warriors and angels.

There is gear available to support your: Son, Daughter, Survivors (Had/Have a Brain Tumor), Brother, Sister, Grandson, Granddaughter, Niece, Nephew, Cousin, Father, Mother, Husband, Wife, Grandmother, Grandfather, Uncle, Aunt, and Friend (boy/girl).

For those interested, proceeds from the sale of these products will be distributed among the following:
Jessica C. Randall Memorial Scholarship FundChildren's Brain Tumor Foundation (http://cbtf.org/)

The Brain Candy Project (http://braincandyproject.org/)

Jacob's Smiles (http://jacobssmiles.com/ -- site not functional yet, but I think many of you know Christine and her son, ^Jacob^.)and,

pending: Aimee's Army (http://aimeesarmy.org/)

I hope you all enjoy the gear. I figure I'll be wearing gray all year long!!!! :)


~Heide Randallm/o ^Jessica^ (Forever 17) & Jake (17)

http://wallofcourage.com/

http://caringbridge.org/visit/jessicarandall

A simple way to change the future

I personally know of 135 children who have passed away because of a DIPG since my daughter Alicia was diagnosed with this terrible cancer in 2005. After their children were diagnosed, these 135 families had about 12 months to accomplish a lifetime of dreams with their children. They will never see their child go on their first date, drive a car, graduate from high school, get married or have their own child.

Diffuse intrinsic pontine glioma is one of the worst brain cancers, with no real effective treatment and no cure. Some doctors believe finding a cure for DIPGs may very well lead to a cure for all brain tumors. We desperately need to fund research. We need to change the future for our children and grandchildren.

Thank you for supporting Just One More Day and helping us raise awareness for DIPGs. Now I'm asking you to take it a step further; I'm asking you to visit http://www.firstgiving.com/21687 and develop your personal page to benefit Just One More Day for Love, Hope and a Cure.

If 100 of our wonderful supporters donate just $5.00, we would raise $500.00. But, if each of us sets up FirstGiving page and 50 of our friends donate $5.00, the amount we raise increases to $25,000.00. With this money we could begin funding a research protocol - the first step to finding a cure.

Starting a page at FirstGiving.com is quick and simple. After your page is ready, you can e-mail it to friends, family and colleagues. You will continue to raise awareness about this rare disease and will also allow those who wish to help to donate by credit or debit card in an easy, secure, online transaction. Please take a moment and look at my daughter's FirstGiving page at http://www.firstgiving.com/jomdashley and consider her plea for an answer to the question that changed her life.

Together we can make a difference. Together we can find a cure.

Thank you for your time and support.
With Hope,
Christine Martin
Angel Alicia's Mom
http://www.firstgiving.com/jomdchristine

Thank You Michigan State University Child Life Organization for Spartan Students

Members of the MSU Child Life Organization volunteer in the pediatric wing at Sparrow Hospital. Through this work, the students have grown to love the Smith family from Dewitt, Michigan. According to MSU student Nicole Tanghe, "Andrew is a delightful young man and always has something to say that will make anyone smile." To honor Andrew, the student group organized a fundraiser for pediatric cancer research. The event featured an information booth, buffet, a silent auction, and children's games. Special guests included some current and former MSU football players. The students' efforts were wonderfully successful and Just One More Day is pleased to receive their generous donation.

Visit JustOneMoreDay.org to learn more
about diffuse intrinsic pontine gliomas, the Smith family,
and how you can make a difference.

A parents plea to help fight a diffuse intrinsic pontine glioma (DIPG)

Tonight I come to you with a heavy heart and a plea. It has been 3 months since our sweet girl left our arms to be held in the arms of Jesus. She is now painfree, without limitations dancing and singing with no worries or cares. It is a beautiful vision in my mind, but it does not erase the pain and emptiness in my heart. Recently 2 other sweet innocent kids joined her Ellie Willaert and Ian Henderson. It is overwhelming to me to know that 2 more families in one day have been shattered by this dreadful tumor. But what is even more dreadful and heart wrenching is that there will be more. We have no idea why this tumor happens and we have no idea how to effectively stop it and hundreds of children will die each year because of it and hundreds of families each year will be shattered. Thousands of children and families already have been through this in the last 30 years. I don't want to see thousands of more children or families go through this in the next 30 years.

You have all been so faithful in your prayers and willing to support Ella and our family during her fight and even during our grief journey. You keep reminding us that you are here and you have not forgotten. You have shared stories with us how Ella touched you, changed you or made you a better person. Many of you follow other DIPG kids and are touched by them. Now I ask you will you help us fight? Will you help us end this tumor and end the suffering of the children and families who have and will walk in these footsteps? Will you pledge to volunteer, donate, write letters, whatever it takes to get the funding needed to stop this monster? It took me to loose my sweet little girl to know what this disease was, don't wait for that to happen to you, because it can happen to your child it can happen to anyone's child. I am proud and blessed to say that I have a group of friends who are committed to helping me do whatever it takes. To not let another Ella, go through what our Ella went through. I hope that you will join and commit also to one of the many DIPG foundations that have been started in honor of these beautiful children. I hope that you will support the Kids currently fighting DIPG in your community. I beg you to commit in some form, shape or way and show how much these kids have touched you and changed you. I am asking you for HOPE for a brighter future for kids with DIPG. In numbers there is greatness.

With tears, love and hope,
Erika
m/o Ella Hope, forever 7
http://www.caringbridge.org/visit/ellahope