DIPG/DIPT Discussion

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Just One More Day for Love, Hope & a Cure


A searchable blog on DIPG research, DIPG news, recent publications, DIPG Foundations, DIPG researchers, clinical trials as well as other issues relating to Diffuse Intrinsic Pontine Tumors- both Diffuse Intrinsic Pontine Gliomas (DIPGs) and Atypical Pontine Lesions (APLs).

For parents, family and friends of children with DIPG looking for information and connection to others dealing with DIPG please check the buttons on the right hand side for resources.

Tuesday, January 27, 2009


DIPG Digest

DIPG News brought to you by:
Just One More Day for Love, Hope & a Cure
http://www.JustOneMoreDay.org

January 21, 2009
Foundations News

http://www.marcjr.org/Home/tabid/235/Default.aspx : Introducing The Marc Apodaca Jr Children's Glioma Cancer Foundation

http://www.marcjr.org:80/FoundationMembers/MossReport/tabid/461/Default.aspx : BRAIN STEM GLIOMA-CHILD MOSS REPORT

http://www.justonemoreday.org/ParentPointers/DIPGConference.html : Memorial "Alicia Pueyo Workshop -- Research on pontine gliomas -- Barcelona, February 26th 2009

http://josiefoundation.org:80/distributions_grants.html : The Josie Foundation distribution to Give Kids The World

Medical News

http://www.clinicaltrials.gov:80/ct2/show/NCT00572182?term=MK0752&rank=4 : MK0752 in Treating Young Patients With Recurrent or Refractory CNS Cancer

http://www.abc2.org:80/advancev4/fan.htm : “Depleting Cancer Stem Cells by Notch Pathway Blockade in Glioblastomas” XING FAN, M.D., Ph.D. Johns Hopkins University


Foundations Updates

Gunner's Magic Train http://www.gunnergillespie.com/
Gunner's Magic Train is trying to "BOUNCE OUT PEDIATRIC BRAIN TUMORS"On Feb 6 during the Marshall County vs. Murray High we will be hosting the fundraiser to raise funds and awareness for brain tumors.

Riah's Rainbow http://www.caringbridge.org/visit/mariahklein
Riah's Rainbow... helping children love art as much as Mariah did. To learn more please visit http://www.caringbridge.org/visit/mariahklein
For past issues of DIPG Digest please visit http://www.justonemoreday.org/ParentPointers/DIPGDigest.html


Please submit information you feel will be helpful to DIPG families to JustOneMoreDay@cfl.rr.com subject: DIPG Digest


Copyright 2009 Just One More Day for Love, Hope & a Cure, Inc. All rights reserved. The materials and links provided on this site have been prepared for information purposes only and should not be construed as advice or opinions on any specific facts or circumstances. Medical research concerning disease and treatments is an ongoing process. Readers should not act upon this information, but should obtain advice from physicians, medical institutions or other professionals, as appropriate.

Sunday, January 25, 2009

Another Tool

We are beginning this blog with the idea that it will be a place for people to obtain news and updates on what's going on in the DIPG community. We see it as another resource for sharing information regarding our children, treatments, diagnosis, and the work parents and others do to honor the memories of the children taken by a DIPG.

This is definitely a work in process and we'll see how it develops. We expect this will always be an informal place where we can post thoughts, ideas, and ramblings.

Thanks for checking in on us.