DIPG/DIPT Discussion

brought to you by

Just One More Day for Love, Hope & a Cure

A searchable blog on DIPG research, DIPG news, recent publications, DIPG Foundations, DIPG researchers, clinical trials as well as other issues relating to Diffuse Intrinsic Pontine Tumors- both Diffuse Intrinsic Pontine Gliomas (DIPGs) and Atypical Pontine Lesions (APLs).

For parents, family and friends of children with DIPG looking for information and connection to others dealing with DIPG please check the buttons on the right hand side for resources.

Tuesday, May 12, 2009

UmbrELLA of Hope

Please join us for UmbrELLA of HOPE a family fun event in remembrance of Ella Hope Hauschildt and families fighting Diffused Intrinsic Pontine Glioma (DIPG).
On December 7, 2007 our lives changed forever, our daughter Ella Hope was diagnosed with a DIPG a rare and inoperable brain tumor.
During Ella’s fight we tried conventional and alternative treatments, but to this day there is still no known treatment that is able to destroy this tumor.
Ella was born into heaven on November 21, 2008 after an 11 ½ month battle. On that day our focus changed from fighting for our little girl’s life, to fighting for brighter days for all children and families dealing with this dreadful tumor.
I ask that you join us in this fight on Saturday May 16, 2009 at the UmbrELLA of HOPE family fun event http://www.umbrellaofhope.com/ to remember Ella and all children fighting this disease and to support Just One More Day.org.
Just One More Day.org is committed to providing information and support for families affected by Diffused Intrinsic Pontine Glioma, promoting awareness and funding research for a cure. The event will include a family walk on the trails of Lake Front Park in Prior Lake, Minnesota.
Other events include:
* Kids bounce houses
* Face painting
* Clowns
* Music entertainment
* Story telling
* Much more.
To register for the Family Fun Event please go to http://www.umbrellaofhope.com/ . We look forward to seeing you and we appreciate and applaud your willingness to walk with us in this battle!!!
Donations of coloring books, crayons, markers, colored pencils and craft items will also be collected for Riah’s Rainbow http://www.riahsrainbow.org/. Riah’s Rainbow was created by the Klien family in memory of little Mariah Klien who passed away from DIPG on August 31, 2008. Their goal is to bring smiles to the faces of children who have to endure a day, a week or even months in the hospital. All donations will be delivered to Fairview University Hospital. Please consider bringing a donation to bring smiles to kids who are battling cancer or chronic illnesses.