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Sunday, March 8, 2009

The Georgian Senate Resolution

On March 5th, the State Senate of Georgia passed a resolution calling the President and the Congress of the United States to support and enact the “National Childhood Brain Tumor Prevention Act of 2009”. One of the key people in getting this passed was Marsi Thrash, one of our DIPG Foundations Alliance Members. Marsi urges others to become involved- even reworking the wording of the Georgia resolution for different home states (full text of the resolution below). Our DIPG families can be a leader for all pediatric brain tumors by advocating to pass the National Childhood Brain Tumor Prevention Act of 2009 (S. 305 and HR. 653). You can find out more about how to be involved from –

Urging the President and Congress of the United States to support legislative efforts to enact the "National Childhood Brain Tumor Prevention Network Act of 2009"; and for other purposes.

WHEREAS, tumors kill more children than any other disease, and brain tumors are the second most common type of cancer in children; and

WHEREAS, childhood brain tumors are the leading cause of death from solid tumors in children; and

WHEREAS, the World Health Organization has recognized and defined new types of brain tumors, many of which occur in children; and

WHEREAS, the causes of most childhood brain tumors are unknown, but it is clear that these tumors have substantial costs for the affected children, their families, and society as a whole and can result in death and the loss of many years of potential life; and

WHEREAS, the prognosis for most children suffering with brain tumors is dismal and survivors face lasting adverse health effects; and

WHEREAS, because of the relatively low overall incidence of childhood brain tumors, such tumors frequently do not receive sufficient attention and research funding; and

WHEREAS, no single institution has a sufficient number of patients to independently conduct research that will adequately address the causes of childhood brain tumors; and

WHEREAS, there has been no comprehensive study analyzing all relevant clinical, biological, and epidemiological aspects of childhood brain tumors to identify potential risk factors and determine the cause of such tumors; and WHEREAS, existing national cooperative clinical oncology groups primarily investigate treatment options and prognosis and do not typically examine the origins of childhood brain tumors or the risk factors associated with such tumors; and

WHEREAS, a significant majority of children with brain tumors are first treated by neurosurgeons and not by the oncologists typically involved in such groups.

NOW, THEREFORE, BE IT RESOLVED BY THE GENERAL ASSEMBLY OF GEORGIA that this body does hereby urge the Congress of the United States to enact and the President to sign H.R. 653 and S. 305, creating the National Childhood Brain Tumor Prevention Network.

BE IT FURTHER RESOLVED that the Secretary of the Senate is authorized and directed to transmit an appropriate copy of this resolution to the Honorable Barack Obama, President of the United States, and each member of the Georgia congressional delegation.