DIPG/DIPT Discussion

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Just One More Day for Love, Hope & a Cure

A searchable blog on DIPG research, DIPG news, recent publications, DIPG Foundations, DIPG researchers, clinical trials as well as other issues relating to Diffuse Intrinsic Pontine Tumors- both Diffuse Intrinsic Pontine Gliomas (DIPGs) and Atypical Pontine Lesions (APLs).

For parents, family and friends of children with DIPG looking for information and connection to others dealing with DIPG please check the buttons on the right hand side for resources.

Thursday, March 5, 2009

A simple way to change the future

I personally know of 135 children who have passed away because of a DIPG since my daughter Alicia was diagnosed with this terrible cancer in 2005. After their children were diagnosed, these 135 families had about 12 months to accomplish a lifetime of dreams with their children. They will never see their child go on their first date, drive a car, graduate from high school, get married or have their own child.

Diffuse intrinsic pontine glioma is one of the worst brain cancers, with no real effective treatment and no cure. Some doctors believe finding a cure for DIPGs may very well lead to a cure for all brain tumors. We desperately need to fund research. We need to change the future for our children and grandchildren.

Thank you for supporting Just One More Day and helping us raise awareness for DIPGs. Now I'm asking you to take it a step further; I'm asking you to visit http://www.firstgiving.com/21687 and develop your personal page to benefit Just One More Day for Love, Hope and a Cure.

If 100 of our wonderful supporters donate just $5.00, we would raise $500.00. But, if each of us sets up FirstGiving page and 50 of our friends donate $5.00, the amount we raise increases to $25,000.00. With this money we could begin funding a research protocol - the first step to finding a cure.

Starting a page at FirstGiving.com is quick and simple. After your page is ready, you can e-mail it to friends, family and colleagues. You will continue to raise awareness about this rare disease and will also allow those who wish to help to donate by credit or debit card in an easy, secure, online transaction. Please take a moment and look at my daughter's FirstGiving page at http://www.firstgiving.com/jomdashley and consider her plea for an answer to the question that changed her life.

Together we can make a difference. Together we can find a cure.

Thank you for your time and support.
With Hope,
Christine Martin
Angel Alicia's Mom