DIPG/DIPT Discussion

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A searchable blog on DIPG research, DIPG news, recent publications, DIPG Foundations, DIPG researchers, clinical trials as well as other issues relating to Diffuse Intrinsic Pontine Tumors- both Diffuse Intrinsic Pontine Gliomas (DIPGs) and Atypical Pontine Lesions (APLs).

For parents, family and friends of children with DIPG looking for information and connection to others dealing with DIPG please check the buttons on the right hand side for resources.

Thursday, February 5, 2009

Just One More Day for Love, Hope & a Cure

DIPG Digest

DIPG News brought to you by:
Just One More Day for Love, Hope & a Cure

February 5, 2009
Foundations News

http://www.riahsrainbow.org/ : Introducing Riah's Rainbow
Helping children enjoy art as much as Mariah did
The ultimate goal of Riah's Rainbow is to bring smiles to the faces of children who have to endure a day, a week or even months in the hospital. Our mission is to be able to give local hospitals new coloring books,crayons, markers, craft items, puzzles, etc. to pediatric patients.

http://www.smilesforsophieforever.org/grants-for-families.asp : Smiles for Sophie Forever Family assistance
Knowing of the heart-wrenching emotional strain, compounded by the financial burden of caring for and treating the child, the Grant Committee made the application process as simple as possible. There are only three documents required in order to be considered for a $500 renewable grant; applying families are eligible for three grants in a calendar year. The requirements are: the completed SFSF grant application, a letter from the attending physician, and a copy of the patient’s birth certificate.

http://www.kraftwerks-remodeling.com/ : There's a Monkey in my chair
There's a Monkey In My Chair is a program developed by the Love, Chloe Foundation. It is designed for pre-school and elementary aged children who are diagnosed with cancer.
Each child is provided with a "monkey kit" which includes a big stuffed monkey that takes their place in school when they are unable to be there. The kits include the monkey with a backpack, a book, and other items that can be utilized by the child and/or their classmates.
http://www.lovechloefoundation.org/ : Love, Chloe Foundation

Advocacy Call

http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009.html : National Childhood Brain Tumor Prevention Network Act of 2009 S. 305

http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009/LetterToCongressionalRepresentativeandSenator.html : Sample Letter to Congressional Representative and Senator

http://www.justonemoreday.org/Advocacy/NCBTPreventionNetworkActof2009/LetterToStateRepresentativeAndSenator.html : Sample Letter to State Representative and Senator


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